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The ARCI Initiative

Funding the future of Ichthyosis research

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Your donation goes to research of finding a cure.

We are a non-profit initiative dedicated to accelerating the development of advanced therapies for ichthyosis.

Donations fund promising research and therapy development. Through a venture philanthropy approach, potential returns are reinvested into future ichthyosis research.

Our Mission:

To fund research into advanced therapies for ichthyosis

and accelerate the path to a lifelong cure.

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What is ARCI?

Autosomal Recessive Congenital Ichthyosis (ARCI) is a rare group of inherited skin disorders caused by mutations in genes responsible for the skin barrier. People with ARCI experience lifelong dry, thickened, and scaly skin, often accompanied by pain, overheating, infections, and reduced quality of life. While current treatments help manage symptoms, there is still no cure.

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Living with Ichthyosis

For people with ARCI, every day begins and ends with hours of skin care. Painful cracks, overheating, infections, and constant discomfort affect nearly every aspect of life. Yet behind every diagnosis is a person with dreams, ambitions, and a life beyond their condition.

A young boy with Lamellar Ichthyosis with glasses and short blonde hair, wearing an Argentina soccer jersey with the number 10, standing against a plain white wall.
A man smiling outdoors, wearing sunglasses and a black athletic jacket, with trees and cloudy sky in the background. He is an Lamellar Ichthyosis Patient
A young girl with curly hair, wearing glasses and a pink shirt, smiling and making a peace sign with her right hand. She is an Ichthyosis Patient.
A young boy with a skin condition that causes severe, thick, and dark patches of skin covering his body, sitting on a hospital bed wearing red shorts. Lamellar Ichthyosis
Read about life with Ichthyosis